Thrust into Leadership: Facing Neurofibromatosis Head-on

Thrust into Leadership: Facing Neurofibromatosis Head-on

  • Posted on: 26 February 2020
  • By: CCTV

Although Neurofibromatosis affects more people than muscular dystrophy and cystic fibrosis combined, its unique symptoms and difficulty to diagnose have made it a less-known rare disease. Karen Peluso, the Executive Director of Neurofibromatosis North East, shares her journey with NF – from caring for her daughter to supporting thousands of families locally and nationally and winning millions for federally funded research. She has committed her life to making sure NF patients and their loved ones have the support, research, and community they need. Learn more about neurofibromatosis here: https://nfnortheast.org/

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